Peanut Oral Immunotherapy starts today for my son

[HoughMade]

Life would not be worth living without PB&J.

Absolutely. I mean, I don’t eat bread or jelly, but a PB is pretty good.

 

[foszoe]

I can forego the jelly, but the bread? Nah. gotta have bread!

Absolutely. I mean, I don’t eat bread or jelly, but a PB is pretty good.

 

[Alpo]

Well, I've gotta say I admire any 10 y.o. who can look suffering in the face and stare it down like this young man.

 

[hoosierdoc]

Well, I've gotta say I admire any 10 y.o. who can look suffering in the face and stare it down like this young man.

Exactly. I’ve told him that multiple times. I appreciate you saying that and I will pass it along to him.

Vomited again last night after it. Going to start Zantac per their recs and see how it does

 

[actaeon277]

Maybe the rate of advance is a bit aggressive?

 

[HoughMade]

Well, I've gotta say I admire any 10 y.o. who can look suffering in the face and stare it down like this young man.

Absolutely!

Enduring hardship for a benefit long down the road is a marker of maturity and a predictor of personal success.

 

[hoosierdoc]

Maybe the rate of advance is a bit aggressive?

He was doubling his dose every 20mins until he got to 6mg. That was the goal for first visit. Then he got abdominal pain and nausea. So we started off at 3mg. His symptoms have slightly progressed each dose of 3mg though. The slowest they’ll increase dose is a two week interval

 

[hoosierdoc]

Added ranitidine tonight before the dose. He vomited again 45 mins after the dose. Sigh.

Spoke With the on call fellow, she’ll talk to the director and come up with a plan. Not sure if we’ll back off the dose or what we’ll do. Sad here.

 

[actaeon277]

So are we. (sad)

I'm hoping they come up with something.

 

[d.kaufman]

Added ranitidine tonight before the dose. He vomited again 45 mins after the dose. Sigh.

Spoke With the on call fellow, she’ll talk to the director and come up with a plan. Not sure if we’ll back off the dose or what we’ll do. Sad here.

You got one tough young man there Doc. I pray it all works out for you guys in the end!

 

[hoosierdoc]

Thanks guys. New plan is no dose Saturday then back in the saddle Sunday at 0.8mg. I don’t want him to lose cooperation with these symptoms. Backing off that far should help

 

[T.Lex]

I remember getting weekly injections as a kid for my allergies, just a bit older than he is.

That sounds like one of the few times we had it easier "back then."

Your kid is a fighter!

 

[rhino]

Thanks buddy.

ideally you start young, like under 3 so your immune system can remodel more. But, at least we’re starting.

no symptoms after 1.5mg.

to make the solution we had to buy PB2 powder and a set of measuring spoons down to 1/64 tsp. They put 1/64 tsp powder into 13ml solution and 1ml is 1mg

Doc:

Are you confident that the concentration of the ingredient of interest is consistent in the powder from from batch to batch of the powder?

Given the size of the doses, might it be a good idea to consider weighing instead of using a volume measure to eliminate error due to how tightly or loosely the powder is packed in the spoon?

 

[natdscott]

Doc:

Are you confident that the concentration of the ingredient of interest is consistent in the powder from from batch to batch of the powder?

Given the size of the doses, might it be a good idea to consider weighing instead of using a volume measure to eliminate error due to how tightly or loosely the powder is packed in the spoon?

Yeah. That's surely what I think, coming from a lab science background.

 

[patience0830]

Thinking about you and your young'un this afternoon, Doc. Weighing the dose sounds wise to this old layman reloader. Hope your boy finds his way through this desensitization. Peanut butter doesn't qualify as one of life's great joys, but it goes in some pretty tasty stuff. Peanut butter cookies come to mind. I'm sure it would be a relief to both of you to not be constantly worried about random contacts too. The stuff is ubiquitous in the USA.
Many thanks to G. W. Carver.

 

[DoggyDaddy]

Thinking about you and your young'un this afternoon, Doc. Weighing the dose sounds wise to this old layman reloader. Hope your boy finds his way through this desensitization. Peanut butter doesn't qualify as one of life's great joys, but it goes in some pretty tasty stuff. Peanut butter cookies come to mind. I'm sure it would be a relief to both of you to not be constantly worried about random contacts too. The stuff is ubiquitous in the USA.
Many thanks to G. W. Carver.

Sometimes it goes in things that you wouldn't expect. I remember years ago we were at a family dinner at a Chinese restaurant and my brother-in-law (allergic to peanuts) started having a reaction. Came to find out that peanut butter was used as a binder in the egg rolls.

 

[patience0830]

Sometimes it goes in things that you wouldn't expect. I remember years ago we were at a family dinner at a Chinese restaurant and my brother-in-law (allergic to peanuts) started having a reaction. Came to find out that peanut butter was used as a binder in the egg rolls.

Very true.

 

[rhino]

Thinking about you and your young'un this afternoon, Doc. Weighing the dose sounds wise to this old layman reloader. Hope your boy finds his way through this desensitization. Peanut butter doesn't qualify as one of life's great joys, but it goes in some pretty tasty stuff. Peanut butter cookies come to mind. I'm sure it would be a relief to both of you to not be constantly worried about random contacts too. The stuff is ubiquitous in the USA.
Many thanks to G. W. Carver.

You . . . you . . FIEND!

 

[hoosierdoc]

I appreciate the offers for more fine measurements but I think we’re ok. We’re taking 1/64th teaspoon and putting it in 13ml water and giving him 0.8ml of that. Even if I was off 50% on measuring it only gets us to 1.2mg which should still be fine. Further doses should require less precision since they’re larger.

Today is the second dose of the lower amount and he did ok with it

 

[patience0830]

You . . . you . . FIEND!

That's me. Choosing my great pleasures with great care. In a fiendish fashion, of course.